Michael J. Bowen: For epilepsy, Senate medical marijuana bill is ‘step in right direction’

legal-medical-marijuana-large
Michael J. Bowen

You may have heard about a man having a grand mal seizure on the Florida Senate floor two weeks ago.

That was me.

I am a die-hard conservative activist.

I support Floridians’ now-constitutional right to access medical marijuana.

And I’m a patient.

I was diagnosed with epilepsy at age 13 and like most went through the brutal process of trying numerous barbiturates until finding the right ‘cocktail’ that worked. Every epileptic case is unique and requires a custom treatment. In my case, it took 600 mg of downers per day to control my seizures; affecting my motor skills, thinking and lifestyle.

Needless to say, it was a life changing event.

Thirty-four years later, my epilepsy is intractable. That means big pharma drugs no longer work to prevent my seizures. After a year of research, my wife convinced me to try CBD oil, which has virtually no THC. It works.

After months of testing dosages, we have reduced the severity and quantity of my seizures dramatically. CBD oil also works as a “rescue” medication that can stop a seizure within seconds, and it is the only medicine that helps my epilepsy.

One in 26 people have epilepsy; more than Parkinson’s, Multiple Sclerosis, Autism and Cerebral Palsy combined. Every year over 54,000 people will die as a result of epileptic seizures — the fourth leading killer in Florida alone. Epileptics like myself literally wake up and thank God for another day.

Medical marijuana is helping ensure that I get the chance to wake up every day.

It is hard to adequately explain what having a seizure is like.  For me, I get an “aura” seconds before going into full convulsions.  When I come out of it, I can’t tell you my name, my wife’s name, where I am, or even what year it is.  All of this comes back over the next hour or so.  I do, however, recognize people.

The pain is extraordinary. Imagine your hardest workout and multiply that by 10.

After a seizure, sheer exhaustion puts me to sleep for days. After the last time — at the Senate committee — I bit my tongue so hard I could barely talk for a week.

Three weeks ago, as a member of the board of directors for the Epilepsy Foundation of Florida, we held a “walk the talk” awareness event. There were dozens of kids walking who suffered from epilepsy.

Four families walked in-memoriam of children who had died.

It was truly emotional and steeled my resolve to fight for those kids.

I tell you this so you will understand the true medical need for cannabis.  It is incomprehensible to think we make opiate painkillers more accessible that a natural healthy alternative.

House Bill 1397 — even in its amended form — is an awful attempt to make medical marijuana legal in name only.

HB 1397 is the equivalent of Obamacare:  many have health insurance, but outrageous deductibles prevent most from getting actual health care.

It’s a disaster for patients.

I support Senate Bill 406, aka the Bradley bill. It’s not perfect, but a step in the right direction.

In the final legislation, I would like to see more competition and the decriminalization of public application by caregivers.  It should never be a crime to save a life. Period.

I was a senior adviser for Donald Trump’s campaign in Florida, and proud of the result. We won with 49 percent of the vote in November. In comparison, a whopping 71 percent of the voters told our legislature to legalize medical cannabis.

I am very disturbed that the will of the people is largely being ignored.

I can assure lawmakers that, regardless of party affiliation, if you vote against the will of the people, we will work get you out of office.

My wife and I, along with numerous other patients and caregivers will be back in Tallahassee this week to continue to fight for this lifesaving medicine.

I would urge anyone reading this to go to identify your representative and senator and remind them of their duty.

Hurry up! Session ends this Friday.

___

Michael J. Bowen is CEO of Coalition For a Strong America  (www.coalitionforastrongamerica.com) and a board member of the Epilepsy Foundation of Florida. He is a patient, not a criminal.

Guest Author


2 comments

  • Chris

    May 2, 2017 at 11:25 am

    Michael, thanks for the email and your support of epilepsy. My daughter has has epilepsy. She is 19 and was diagnosed at age 9. The last 10 years have been very difficult for my daughter and our entire family. She has been any many (most) epilepsy meds that for the most part do nothing for her epilepsy. I do think they have affected her cognitively but in a very negative way. About 2 years ago I approached her doc about medical marijuana. There was interest but nothing happened. Shortly after that I read about cbd and brought that to his attention. Again interest but little action. I am sure the lack of interest was simply due to the fact both of these treatments are illegal in the state of IL. Well finally about 3 weeks ago the doc approved cbd. My daughter would have 1-2 drop seizures per day. She has only had 2 in the last 3 weeks. My question to you is how much of the prescription epilepsy drugs do you continue to take and can you describe your transition to cbd. Keep the fight

  • Ben James

    May 2, 2017 at 11:57 am

    I am 61 and have been consuming cannabis off and on since my late teens (over 43 years). I’m a husband, father, electronics engineer, community volunteer, musician, marathon runner and successful business owner. I never drink alcoholic beverages or use tobacco products. I vaporize cannabis (no smoke, no smell, no problems) in the evening after work or on weekends. I am in excellent health, my memory is completely intact and I run 40-50 miles per week and finished my 3nd Marathon at Big Sur California April 30, 2017 in 3 hrs, 25 mins, 8 seconds. First in my division thank you very much! I am just one of millions of health conscious Americans seeking the least harmful buzz. How long do we have to suffer the lies and ridiculous nonsense from a government whose own data at the CDC shows cannabis nearly harmless by comparison to prescription drugs, tobacco and booze??

Comments are closed.


#FlaPol

Florida Politics is a statewide, new media platform covering campaigns, elections, government, policy, and lobbying in Florida. This platform and all of its content are owned by Extensive Enterprises Media.

Publisher: Peter Schorsch

Contributors & reporters: Phil Ammann, Jason Delgado, Drew Dixon, Renzo Downey, Rick Flagg, A.G. Gancarski, Joe Henderson, Janelle Irwin, Ryan Nicol, Jacob Ogles, Scott Powers, Andrew Wilson, and Kelly Hayes.

Email: Peter@FloridaPolitics.com
Phone: (727) 642-3162
Address: 204 37th Avenue North #182
St. Petersburg, Florida 33704