Andrew Meacham
A study group aimed at preventing death caused by blood clots will meet in the coming weeks.
SB 612, the Emily Adkins Blood Clot Prevention Act, passed the House with unanimous support. The measure authorizes a volunteer work group to study a silent killer rated the second leading cause of sudden unexpected death.
The Senate approved the bill unanimously last week.
Backers hope the work group, the first of its kind nationwide, will set a trend.
The bill pushes the Legislature closer to a “historic first step in the United States aimed at blood clots and pulmonary embolism — we are grateful to Speaker (Paul) Renner and the House leadership team for including this bill on special order today,” said Douglas Adkins of Fernandina Beach. Adkins’ daughter, Emily, died October 21, 2022, triggering the actions that led to this legislation.
Emily Adkins was recovering from a broken ankle when she suffered a pulmonary embolism. Douglas Adkins and his wife, former House member Janet Adkins, subsequently complained to the state’s Department of Health over their daughter’s care at Jacksonville’s Mayo Clinic. The Department is investigating the death.
The larger problem, said Dr. Jeffrey Kline, a professor and research chair at Wayne State University School of Medicine, is that blood clots are under-researched and underfunded, leading patients to underestimate their danger.
“Lay people don’t know about this problem,” Kline said “They don’t know what the symptoms are and many doctors are the same.”
The National Alliance of Blood Clot Prevention estimates that 900,000 Americans sustain blood clots each year, and 100,000 die. Leslie Lake, the group’s president, said that the goal of work such as this act is not to urge physicians to rewrite their guidelines.
“The guidelines are fine now but people need to read them,” Lake said. “You can have the best product in the world but if nobody’s using it, who cares?”
3 comments
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Alan Frisher
May 5, 2023 at 11:22 am
Mr. Meacham:
Thank you for your coverage of the Emily Adkins Prevention Act. Pulmonary Emboli are indeed silent killers that many people know nothing about.
Back in 2020, at age 58 after not being able to walk up the staircase in my own home without feeling as if I ran a marathon, I went to the emergency room and was diagnosed with sub massive, bi-lateral pulmonary embolisms in both lungs. Two physicians told me how lucky I was and that if the clots moved, I would have experienced instantaneous death. After 4 days in the ICU on a Heparin drip, I am happy to say that I experienced a full recovery and am now doing just fine. My problem came about from a genetic issue called Factor V Leiden, something I had no control or knowledge of beforehand.
In any case, while in the ICU, I wrote this poem that I wanted to share with you:
What is a Pulmonary Emboli?
But a clot that forces you to sit or lie
It’s often derived from a place down below
Then travels on up as if it knows where to go
It causes much worry, and can turn on a dime
Results could be deadly if not detected in time
Your breathing is shallow and your gait is reduced
With no other symptoms that have now been produced
A blood thinner drip to reduce all the pressures
A wait and watch attitude
From the Docs and Professors
In the emergency room I see you (ICU)
Waiting on the emboli, I haven’t a clue
Hopefully my body will dissipate the clots
And I’ll continue to love and live…lots.
——Alan Frisher 11-11-2020
Marla Kaplan
May 6, 2023 at 2:04 pm
amen
I want you around for many years to come.
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