Governor signs off on Progressive Supranuclear Palsy committee

Brain-active-istock
A former legislator's father is incapacitated due to this condition.

Florida’s Surgeon General Joseph Ladapo will be tasked with focusing his office on brain diseases in the wake of legislation signed Friday by Gov. Ron DeSantis.

SB 186, colloquially called the “Justo R. Cortes Progressive Supranuclear Palsy Act,” compels Ladapo to set up a progressive supranuclear palsy and other neurodegenerative diseases policy committee.

“Without proper detection at an early stage, PSP will only worsen with life-threatening complications,” sponsoring Sen. Jason Brodeur said to State of Reform earlier this year.

“We have not found a cure for PSP, so the biggest focus is on managing care. This bill (directs) the Department of Health to establish a work policy group comprised of healthcare workers, family members, and advocates whose aim is to identify those in our state with PSP and other neurodegenerative diseases, create a standard of care for detection and treatment, (and) develop recommendations to help improve patient awareness, especially in our more vulnerable population areas.”

The bill is named after the father of former state Rep. Bob Cortes. The legislator’s father, now in his 80s, is wheelchair bound and incapacitated due to the ravages of this disease.

Ladapo is compelled to move quickly.

The committee must be appointed by Sept. 1 and must hold its first meeting by Oct. 1, with all meetings by teleconference.

A progress report from the SG is required by Jan. 4 of next year, and from there Ladapo has a year to file a final report.

The committee is slated to sunset by July 2026.

A.G. Gancarski

A.G. Gancarski has been the Northeast Florida correspondent for Florida Politics since 2014. His work also can be seen in the Washington Post, the New York Post, the Washington Times, and National Review, among other publications. He can be reached at [email protected] or on Twitter: @AGGancarski


3 comments

  • Dont Say FLA

    May 11, 2024 at 10:53 am

    Ladapo’s on it? That’ll fix it. LOFL Ladapo’s fix will be coming soon to that ThereIfixedIt site that usually features a lot of duck tape

  • Richard D

    May 11, 2024 at 12:14 pm

    Although the causes of most neurodegenerative diseases are deemed to be mysterious, the actual cause(s) is likely iatrogenic. A search for the cause(s) isn’t mentioned in the article. A “standard of care” to be created refers to the creation and implementation of a treatment “protocol,” which likely will be a set of rules requiring specific pharma medications as approved by doctors’ groups, health insurers and the state.

  • P. R. Hystery

    May 11, 2024 at 12:41 pm

    “. . .the actual cause(s) is likely iatrogenic” . . –that is to say, an unintended byproduct of other medical treatments.

    I find this impossible to accept. Modern medicine is science, right, and science is always, always, always correct and good, right? And any other point of view is simply prehistoric, right? And if you need further proof, ask NPR, damyt!

Comments are closed.


#FlaPol

Florida Politics is a statewide, new media platform covering campaigns, elections, government, policy, and lobbying in Florida. This platform and all of its content are owned by Extensive Enterprises Media.

Publisher: Peter Schorsch @PeterSchorschFL

Contributors & reporters: Phil Ammann, Drew Dixon, Roseanne Dunkelberger, A.G. Gancarski, Ryan Nicol, Jacob Ogles, Cole Pepper, Jesse Scheckner, Drew Wilson, and Mike Wright.

Email: [email protected]
Twitter: @PeterSchorschFL
Phone: (727) 642-3162
Address: 204 37th Avenue North #182
St. Petersburg, Florida 33704