Haley BrownApril 28, 2021
6min1352
Baxley knows what it's like to have a rare disease devastate a family.
Tag: Rare diseases
Haley BrownApril 28, 2021
Guest AuthorAugust 20, 2018
5min232
Many efforts are underway to improve America’s health care system, but there is one issue affecting Florida’s most vulnerable patients that has yet to receive the attention it deserves. Floridians living with chronic and rare diseases are being denied lifesaving care simply because they benefit from charity aid — and this is all the result […]
Guest AuthorNovember 25, 2016
4min186
Two years ago, I held a series of roundtable meetings in Lutz, Florida with physicians, advocates, patients, and families from our area to hear about the challenges of finding cures for the thousands of deadly and chronic diseases impacting millions of Americans. Diseases like cancer, ALS, Alzheimer’s and the 7,000 rare conditions. These discussions were […]